Iceni prefers to take someone else to appointments.
Transcript
I feel very strongly about that but I feel very strongly that women should have a voice in their treatment. They should know more in everything. They should know and not be afraid to ask the doctors questions. They’re not Gods, they might act like some of them superior but they’re not. No! So they do intimidate people especially when you’re sick. And you don’t want them to be bothered or you’re scared to ask. So I would advise breast cancer, or any cancer patients, to have a family member or good friend always with them so they can hear or tape record it. But always have somebody to say “She doesn’t feel well.” You’re too sick, you want to get somebody else to get in bad with the doctor rather than you get another needle. It’s what I’m saying, you don’t want to piss the doctor off, so you’re not going to ask questions that you think might be irrelevant or whatever. So if you’ve got somebody with you, like a daughter or a friend, to say “Well she has to know.” That’s not afraid to ask.
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- Endocrine (hormone) therapy -IceniIceni's new doctor advised her to stop taking the pills considering the time she had taken them and the side-effects she was experiencing.
- Messages to others – IceniYou can't do all the things you did before, even when you look well. Iceni advises others not to be afraid to help.
- Relating to health care professionals – IceniIceni prefers to take someone else to appointments.
- Sexuality, femininity and intimacy – IceniIn one extreme case, Iceni sustained serious and lasting damage to her pelvic region from radiation. This has made it impossible for her to have intercourse.
- Recurrent and metastatic (advanced) breast cancer – IceniIceni was angry about the recurrence and felt that if she'd had her breast removed during her initial treatment, recurrence might have been avoided.
- Troubling long-term effects of treatment – IceniIceni explained how although she had resumed many of her former activities, her level of interest and enjoyment had diminished.
- Troubling long-term effects of treatment – IceniIceni explains how her body reacted to 6 years of hormone therapy.
- How it affects family and friends – IceniIceni felt people were scared and stopped seeing her. Her own son was not able to visit her.